Alyssa is just finishing her second treatment of Soliris. This dose was 1200 milligrams versus the 900 she had on Tuesday. The infusion is given just before the surgery to ensure that her protection is at the highest level during and after the surgery.
We were just informed that they will take Lyss down at 6:30 am to the OR. Jennifer, her donor is already there. Alyssa's part of the procedure will start around 8:00 am.
We're rolling - off to the ER.
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Hi defs, Nancy, Nate and Bob are reading your blog. Thank you Lord! for all you give to us. We are anxiously waiting to see you Alyssa. You look so comfortable--ha ha Have been talking to Tami, and Laura (lady from Jen's church) small world. Will see you guys soon. Glad this part is over. Love, The Winds
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