Friday - Although Alyssa came home from the hospital late Thursday, it was a quick turnaround as we had to be back at the hospital at 9:30 AM Friday for additional blood labs. Her hematocrit came up to 31 from Thursday's 24, while her platelet count remained the same, meaning she wouldn't need to have another blood transfusion or plasmapheresis treatment. While her hematologist does not believe that the HUS has returned, he does want to tightly monitor her readings through twice weekly blood labs. At this time she doesn't have any major shearing of the red blood cells which was so prominent in her first two hospitalizations; but there are still other symptoms such as the high BP, ongoing nausea and roller coaster lab results that have yet to be explained.
No required treatments meant that the road to Eastview Mall Friday afternoon was clean and green. Three Vera Bradley purchases were made, but two were by mom, so Alyssa's, never ending thirst for new purses went unquenched.
Saturday
Back to the Dialysis Center for her first treatment there since being readmitted to the hospital. We don't know what it is about this place, but it certainly does wreak havoc with her blood pressure. After several treatments in the hospital with relatively low readings, the ugly numbers were back in full force today...205/125. Also making its return was a day full of vomiting. She struggled through the 3 1/2 hour treatment only to find that her BP had dropped to 91/37 on the final reading. This usually occurs when they have taken too much fluid off her, so they extended her treatment to put back on some fluid. Her BP finally came back up (I can't believe that I'm writing about needing her BP to rise) and home she went.
Exhausted both mentally and physically, she slept for the rest of the day.
No treatments or tests of any kind tomorrow. YES!
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You've had quite a day. I pray this nausea and throwing up goes away. No wonder your tired! Tomorrow is a new day and you will feel great. Sleep tight! Love you!
ReplyDeleteGlad you were able to make it to the mall for a much needed change of venue and shopping therapy. How about a picture of the girls and their Vera's???
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