Great dinner, great play and best of all great friends! It was a special night for Alyssa, Debbie and Dave as Alyssa continued to stretch her boundaries. We joined 40 new and old friends at Tapas' for a great dinner followed by the play, Jersey Boys at the Auditorium Theatre. Everything was perfect, especially watching Alyssa enjoying herself so much. She has always loved Broadway shows, so this was the perfect event for her. A special thanks to Jim and Susan LeBeau for putting this all together and especially for including us. You two are the best!
Today, Alyssa had her normal dialysis treatment and also received two units of plasma. Her hematocrit(HCT) had dropped to 22, which is her target level for requiring a transfusion. The transfusion is done as part of her dialysis treatment. As with the last two treatments, she had trouble with the dialysis machine clotting towards the end of her treatment, so they had to cut it short by 20 minutes. By shortening her treatment, they are not able to remove the targeted amount of fluid, so we will have to watch this in the coming days.
Tonight hasn't been a real good night. Alyssa has been experiencing nausea and a general achy all over feeling. Her BP has been elevated a little, but no fever. It may just be a reaction to the two blood transfusions this morning; but as parents, we think the worst and it brings back memories that we don't want to relive.
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