Monday at 2:30pm

Good and Bad News

It's going to be a long day at the hospital for Alyssa. She had labs drawn at 8:30 am, followed by her twice weekly meeting with the transplant team. With the exception of her Phosphorus (down to .7 from .9) her results were very good. However, the Phosphorous is so that low that it will need to be corrected through a four hour transfusion. This is probably what caused Lyss to feel so bad on Sunday. Right now she is Radiology getting a catheter placed in her chest after which she will need a couple hours to recover and eat (fasting since midnight,) then right back to the Cancer Center for the transfusion. Not the ideal way to spend the day after feeling so lousy yesterday.

Due to all of the blood draws and transfusions she has received over the past 21 months, her poor veins are almost impossible to locate, hence the need for a catheter. We won't know what type they have chosen until she is in recovery. It will need to provide access for both blood draws and transfusions and most importantly, be able to stay in place for several months. More on this later.

Lyssa Facts
87.7 million to 1 - the odds of getting a-HUS in the United States - but she still hasn't won the lottery

dd