First we apologize for not providing a written update yesterday. It was a roller coaster day and by the time that we got home there just wasn't any gas left in the tank to write an update. It sounds awful, but there are times when you just don't want to talk about it anymore. We just wish that we would wake up and this would be nothing more than a bad dream.
We did meet with Dr Choudry on Friday. He has been fantastic with Alyssa. He has a daughter who is Alyssa's age, so this has hit very close to home for him. Having confidence in your medical team is extremely important and we have been very happy with those from Unity that have looked after Alyssa.
Update news:
What might or might not be the cause of the TTP-HUS:
Most likely not ecoli - the culture has not grown any bacteria to-date
Not Salmonella - You peanut butter conspirator's can cross this one off
Not her contact lenses - Alyssa is famous for leaving her lenses in too long.
ADAMST13 test was negative. http://www.pnas.org/content/99/18/11552.full
Her birth control pills have become the prime suspect, but there is no definitive test to prove this. So Alyssa will air on the side of caution and discontinue using the pill immediately.
Dr Choudry believes that this is more an HUS than TTP case. He is cautiously optimistic that Alyssa will get through this and will eventually see a return of full kidney function; but that this could take up to three months to happen. He believes that no other organs other than the kidneys have been affected so far.
Her labs were a little disappointing today, so she will be receiving a blood transfusion on Friday and one more on Saturday. She will also undergo both plasma pherisis and dialysis on Saturday.
In closing, let me share what Dr Choudry's motto is:
Always stay optomistic *
Never lose hope *
Always keep fighting
...and she is!
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