What a difference 24 hours makes! We're sending this to you from bedside (Rochester General has free wireless) and Alyssa is off the ventilator, breathing on her own and off the heavy sedation that she was placed on. She is still very tired and sleeping most of the time, but she is communicating with us through a soft whisper. The first thing she asked was "what happened?"...thankfully she doesn't remember anything from Thursday morning on. We wish that they had a drug that makes the parents forget.
In the coming days we'll try to recap exactly what happened the past 48 hours. Right now we still have more questions than answers and are still faced with battling the TTP-HUS and her failed kidneys, BUT, she is smiling, drinking water and complaining about her "dirty hair" and we couldn't be happier! As we said...A VERY GOOD DAY!
dd
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Alyssa, my dear- I am following along on here everyday and praying and thinking of you. I have spoken to my nephrologist that I work with and said the nephrologist @ Rochester General are the best of best.....so u are in great hands...also my mom said the dr's in the ICU etc are great Dr's as well. Thanks for the update Dave. Keep us informed.
ReplyDeleteLove always-
Jocelyn
Alyssa, i know everyone is praying and hoping that you can battle trough this! We miss ya and I hope i can see you when I get home for Valentines day. Keep battling lyss!
ReplyDeleteThank you for sharing this news! You remain in our thoughts and prayers continuously.
ReplyDeletePlease let us know if there is anything that we can do to help you, Alyssa or the boys.