Thursday, January 22, 2009

1/22/09 - Typical Day

Not much new to report. It was what has become a "typical day" for Alyssa...wake up at 5:30 am for blood tests, 7:00 am, doctor's rounds; 9:00 am apheresis treatment; 1:00 PM doctor's rounds #2; well, you get the picture. She did have several visitors today including many friends from Bed, Bath & Beyond.

Her kidneys are still not working which means that she will need to continue both apheresis and dialysis treatments for the foreseeable future. We are hoping the treatments can be handled on an out-patient basis. We are meeting with Alyssa's Nephrologist (http://en.wikipedia.org/wiki/Nephrology) tomorrow morning to get a "big picture" update. We have a long list questions that just can't be addressed when they visit her room each day, so we've asked for a more 1/1 meeting to assess exactly where we are and what the short term prognosis is (were still are not looking much beyond each day.)

Again, thanks for your prayers and support!
dd

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