Tuesday, January 20, 2009 Update #2
Alyssa received her new central line this afternoon. Other than a little bleeding episode after she returned to the room, she came through the procedure in good shape. This more"long term" catheter is necessary to help reduce the chance of infection. The initial one was a "temporary" in hope that she wouldn't need it for very long. Don't read too much into "long term," Alyssa says that she won't need it for very long!
A couple updates on the diagnosis process...they have ruled out E-coli O157:H7 (http://en.wikipedia.org/wiki/Escherichia_coli_O157:H7) as the cause. This means that she is no longer required to be in an isolation environment. Alyssa doesn't eat red meat and like her father, avoids vegetables, so we aren't surprised that she doesn't have this terrible strain of e-coli; but we still aren't any closer to finding the cause.
TTP-HUS (http://www.nephrologychannel.com/hus_ttp/index.shtml) is what they are now calling her ailment. The treatment remains the same whether it is TTP or TTP-HUS.
The link below will take to you an excel file that shows Alyssa's lab results. Sorry that the formatting that we used in the last update did not work in Blogger.
http://spreadsheets.google.com/pub?key=piuvYm5wSQstLNJbaTGBjGw&output=html&gid=0&single=true&range=A1:K10
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