Over the woods and through the snow storm to apheresis we go...
Alyssa woke up not feeling very well today--achy, with a headache, exhausted and general malaise...so bad in fact that she almost expected to go back to the hospital. We also had disappointing news about her platelet count. It had gotten all the way to 197 at one point since she started this but it was only 127 today. The blood specialists have said that we should expect the levels to fluctuate with all she is going through, but given the fact that the last three readings are lower each time, that is not fluctuation but a downward trend that really concerns us. We are hopeful the doctors can make sense of it but we are likely going to get a second opinion as we are concerned that the blood problem may not yet be gone from her system. Fortunately she has begun feeling better since her plasma exchange and called her mom at work to say that she was ok and not to worry about her. She tends to try to keep us "up" about the whole ordeal.
She is suppose to collect her urine today but so far, no luck with that. Yes, we've tried running water and a hot bath.
dd
Wednesday, January 28, 2009
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hi alyssa its judy i hope i am doing this right im really bad with computers well everyone at work says hi im glad u were able to go home we were all wondering if u did i printed your updates and ill put them at work so everyone can see how u are doing sorry i have not had a chance to give u a call well keep your head up think positive i know ur gonna pull through and be all better in no time if u need any thing just give me a call even if u just want someone to talk to u can always call me at work to if u want well i have to go to work now so have a great day ill talk to u later lol judy
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