Monday Monday, sometimes it just turns out that way - The Mamas and the Papas were right on target for Alyssa's Monday. She met with her hematologist in the morning, followed by a plasmapheresis treatment; things were looking good. But then her old nemesis kicked in again - blood pressure issues!
By noon her pressures had reached uncomfortable levels, so off we went to the Dialysis Center to have some fluid removed. Alyssa's dry weight http://www.davita.com/dialysis/treatment/a/1930 target, which is 60 kilos, had mistakenly been changed to 64 kilos on her dialysis chart. As a result of this error, she was carrying six extra kilos of fluids that should have been removed during her last few dialysis treatments. Extra fluid = high BP. They removed two kilos Monday, getting her down to 66 and plan on removing four more kilos during her regular Tuesday treatment. On top of this, her nephrologist, increased the doses on a couple of her prescriptions.
With all of these changes you'd figure we'd be on easy street Monday night. Wrong - her BP continued to rise into the evening leaving Alyssa with a feeling of "what do I have to do to get my BP under control?" To Alyssa, high BP equates to a fear of seizures. Something that none of want to see her go through again.
We're happy to report that by the 2:00 AM dose, her BP started to fall and has remained down this morning. She is now in her second hour of Tuesday's treatment and her BP is 149/87, which is very good for her. However, we're not going to start celebrating just yet as we have been down this path before.
So, what started as a two hour treatment on Monday morning, ended up being nine hour session that ended at 5:30 PM Monday night...sometimes it just turns out that way.
dd
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I don't know Alyssa, but I just started working at the church she and your family attend. I am so glad to have these updates about her, knowing how she is doing. I know it is a great struggle dealing with something rare and complicated. But I know she has the support of her church, her family and we are all holding her and all the family up in prayer. God is with you all the way as we all are. God Bless you all. ~Julie
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